HelpFindACureForHHT

This is my Dad, Allen. He lives in the UK, suffers with a rare genetic gene disorder called HHT and I'm running the 2023 NYC Marathon to raise awareness, and money for the charity focused on finding a cure called Cure HHT. You probably haven't heard of HHT, neither had I until he was diagnosed with it and turns out, not many people in the medical field know much about it either! So what is HHT? It's a mutated gene that causes blood vessels to form improperly, leading to excessive bleeding; in my Dad's case its through his nose and more recently his mouth while he is sleeping. Nosebleeds come with no warning, can last for hours and leave him having to remove himself from wherever he is and hide in a bathroom, exhausting the supply of toilet paper in the process! As you can imagine, this leads to various unintended consequences, such as very low levels of Iron as well as complications in other areas such as his heart. When tackling these side effects, blood thinners are out of the question which rules out many, and in some instances all available medicines and treatments. Oh and HHT is genetic, it gets passed down a child of an HHT patients will have a 50% chance of having it too. HHT does not discriminate, it affects men and women of all ages and ethnic groups. 1 in 5,000 people worldwide have HHT and there are 70,000 patients in the US. Please help find a cure by donating whatever you can, no amount is too small and everything will help Cure HHT to continue their important work.

Thanks in advance for your contribution to this cause that means so much to me.

More information about Cure HHT: Cure HHT is the only organization in the world committed to bringing together international thought leaders who collaborate to advance research and treatment for HHT. It is also the sole provider of HHT education programs and resources for patients and physicians worldwide. For more information, visit www.curehht.org.